from RAND Research Topic: Health and Health Care at https://bit.ly/3rKrue4 on March 31, 2021 at 04:41PM
Patient engagement has become a key component and indicator of high-quality development of clinical practice guidelines (CPGs). Engaging patients in CPG development respects their expertise in the lived experience of clinical conditions and aims to create more patient-centered guideline recommendations. As this area of guideline development has matured, guideline development groups and other healthcare policy stakeholders are interested in shifting from engagement of a limited number of patients at isolated phases of CPG development to more in-depth, continuous engagement of a larger group of patients across all stages of the development process. Frameworks for continuous patient engagement in CPG development have highlighted various approaches to identify the preferences and perspectives of patients, caregivers, and other patient representatives by using surveys, focus groups, and representation on guideline development groups.
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